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Living with ITP: Patients Share Their Stories

 

Thank you to Amgen for supporting the “Living with ITP: Patients share their stories" video.

 

Living with ITP: Patients Share Their StoriesBecome a PDSA Member today and receive a complimentary DVD: Living with ITP: Patients share their stories.

The DVD includes stories from ITP patients and family members about their personal journey with ITP, and expert advice on the mechanisms of ITP and treatment options from PDSA Medical Advisors James Bussel, MD and Terry Gernsheimer, MD. Information about how your membership donation makes a difference in the lives of ITP patients is also included. *Please allow 3-4 weeks for your DVD to arrive.

Caroline Kruse is the Executive Director of the Platelet Disorder Support Association, as well as an ITP patient. In this video Caroline talks about the valuable information, services and community support that PDSA offers.

Kristin talks about her journey with ITP and how it led her to become involved with PDSA, fundraising events and raising awareness for ITP. This video was produced when she was age 20.

In this short video Joan Young, PDSA Founder, shares her ITP story and the reasons why she started PDSA.

Dr. Terry Gernsheimer defines ITP and explains the difference between acute, persistent and chronic ITP and discusses platelet production and destruction.

Jacob has been living with ITP since the age of four. This is his story of diagnosis and treatment, which has led to a policy of watchful waiting.

Emily has tried various treatments to control her ITP with different results. In this video Emily and her family also discuss the importance of becoming involved in the ITP community for information and support.

Dr. Bussel has been treating ITP patients since 1981. In this video he explains ITP basics such as symptoms, treatments and living with ITP.

Marjorie shares her story of diagnosis, treatment, and what ITP has taught her about light.

Genevieve has been living with ITP for over seven years now. She wants everyone to know that "with time and patience you can achieve anything you set your mind to".

Ayla was diagnosed with ITP at age 3. Her and her family discuss her struggle with ITP and give others advice about living with chronic ITP.

Emily A. has tried a variety of treatments for her ITP over the last several years. But one of the most difficult things for her is how to explain ITP to her friends.