ITP Personal Stories

Tic-Tac-Toe

(WARNING - This story is rated R due to graphical descriptions. Most people with ITP do not experience symptoms this severe. ed.)

Well my name is Bill and I had a little headache so I decided to go get a few aspirins at clinic. At a military clinic, they look ya over and take a little blood first. I was late for my class and it was taking them a long time to get my pills. Then I heard all these ambulances coming in and people rushing all over the place. There were about fifty soldiers in the clinic and I was horsing around with them telling them that I feel sorry for the poor fool that dropped dead. Then people came bursting out in the waiting room asking had they seen so and so. I wasn't paying no attention. Then the guy laughed and hit me on the arm and told me that a dead man so and so was missing. I looked at him and said, "You know what...so and so has the same name as me...ha ha ha!" Then the people came to me and asked me for my social security number...ha ha ha...the dead man was me!

And so my life began knowing that I had ITP and a blood count that was not measurable by machine or hand count. It read flat out zero. I just had a headache and it was getting worse every second. By the end of the week, I was big time Army news and doctors all over the world came to watch me die.

Now I didn't feel a thing, but things started getting messy. They put me on the expectant ward, the place where people are expected to die within a week. Oh man, the horror movies got nothing on the military expectant ward. People are croaking around you every minute. You got to make friends and carry on a quick conversation. Friendships last only an evening or a few hours there. All night and day, they were closing curtains around my buddies, zipping bags, and then the dreaded cleaning crew comes in an sterilizes and wipes down the bay.

I had on the average twenty to thirty doctors, nurses, and so called visitors come in with clipboards. They had a clown that acted like a tour guide. Now over here ladies and gentlemen we have a most unusual case...how do you feel today Bill? They were taking so much blood out of me I felt like the American Red Cross. If I'm bleeding to death, why did they kept taking my blood? The guy came around every hour with a basket full of vials and telling me his brother was from Transylvania.

Things got worse when my count was discovered and found to be below 100. I got an out of body experience and felt my whole body was a slab of wet meat. It was very heavy, cold, and clammy. I could feel blood oozing through my veins. I called it the "melt down". It was pretty cool because that is what my body did. Blood oozed out of me everywhere. Urine was red, eyes, saliva, bowel tarry black and bloody. The coolest thing is when I was brushing my teeth and they came out of my gums. I took out all my top

teeth and placed them on the sink. Somebody came into the restroom and saw this and I nearly scared him to death. He was already on the death ward and I was not helping. I put the teeth back in my mouth. I had long blood purpura sacks hanging out my mouth. The students in my class would come to see me and I would show them the big sacks of blood

hanging out my mouth. They would write their names on my skin and we would play tic tac toe on my stomach. I would show them how I would bleed by just rubbing my skin.

All this time I didn't feel any thing but just a kind of a warm rash feeling when you get the chicken pox. The doctors wanted to take out my spleen but I refused knowing doggone well I would bleed to death on the board and I know all those doctors were ready to slice and dice me since I was in a military hospital.

By accident, I found the ITP web site, and I have gone through most of all the ITP experiences. I kind of like my ITP, It makes me kind of special since it is of unknown origin. We all got to die from something but I am living with my ITP. It is like an internal meter. It tells me when I am boozing to much or not eating properly. If I do not exercise out comes the purpura. It is like, hey buddy, ya better take care of yourself or ITP is waiting to send your butt away. While I am typing this a little purpura bump just jumped into my mouth. The funny thing about this is that I can see it come and go. Now I just had a beer and of course one popped out. Shame on me...I am skirting death!

ITP has really changed my life, but I kind of knew I had something since my parents made a big deal of me bleeding for two weeks in the hospital when I was five from a nose bleed. I always got nose bleeds.

If you think I am crazy, you should have seen me on prednisone. Man that stuff had me leaping out windows. I gained 50 pounds and ripping muscles...I was a bad SOB. Well if anybody wants to wrap about ITP and I only want the good stuff, like how you almost croaked and bleed to death kind of stuff. Please e-mail me: wam1@earthlink.net

-- Bill