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Call to the Heart for ITP

"Thank you for all you do! My Grandson has ITP and the information you provide is priceless." - Sandie

"I've been battling ITP for over 5 years now. This year has been the toughest. Thanks for the information and encouraging updates!" - Patsy

"Big Shout out to PDSA for helping me live a wonderful life with ITP. Thanks to PDSA I am connected to the best ITP doctors, receiving expert care and have met so many wonderful ITP friends. The doctors they referred me to in various times of need have helped me manage my ITP over the years. " - Linda

 

Happy … hopeful … loved … grateful. That’s how the generosity and kind gifts of our members and supporters inspire us and touch the hearts of so many ITP patients and family members.

We could not do the vital work of educating and supporting ITP patients and loved ones without the support of our members. Unlike many other patient advocacy groups, PDSA receives NO Federal funding and we never have. We do not employ a lobbyist or public relations company. What we do have is a small staff committed to fulfilling our mission: The Platelet Disorder Support Association is dedicated to enhancing the lives of people with immune thrombocytopenia (ITP) and other platelet disorders through education, advocacy, research, and support.

Each year we continue to grow the organization and reach more people affected by ITP and other platelet disorders. While we celebrate the progress made to date, we continue to focus on the fact that much remains to be done. With the help of our members and supporters, PDSA will move forward with renewed commitment toward raising awareness and educating patients, family members, friends and medical professionals about ITP. PDSA will continue to encourage and support the development of research into the causes of ITP and of safe, effective treatments for all. We hope that we have touched your heart and you will join us in our mission!

To become a member or make a donation to PDSA programs or Research Fund

CLICK HERE

New members will receive the new DVD:  Living with ITP: Patients share their stories

 

PDSA 15th AnniversaryFor 16 Years PDSA has been making the world of ITP a more manageable place to be! Here is what we have accomplished together:

Support Groups

♥ 36 local support groups (including Canada)
♥ 1 Teleconference Support Group for Parents of Children with ITP
♥ 1 Teleconference Support Group for Canadians with ITP

Web site

♥ 200+ pages of FREE information
♥ 30,000+ unique visits per month; 50,000-60,000 total visits per month

Brochures & Articles (FREE)

♥ 18 booklets (including Spanish & French versions) & numerous articles

Publications

♥ 2 quarterly newsletters & FREE monthly e-newsletter
♥ 80,000 copies of Guide to ITP distributed to medical institutions and hematology offices

Discussion Group

♥ 100,000+ messages posted on the PDSA forum

Social Networking

♥ 10,000 + Facebook Friends & Twitter Followers
♥ 12,000 + YouTube & Vimeo videos viewed

Patient Support & Referral Service

♥ 5,000 US and international calls/emails per year

Scholarship Fund

♥ 32 ITP students received the Audi Gerstein Platelet Disorder Scholarship

Annual ITP Conference

♥ 14 annual conferences
♥ 3,000 + attendees
♥ ◦38,000 dollars in conference scholarships given out to attendees in need

National Walk/Run

♥ 4 annual events
♥ 30 locations
♥ 2,500 + participants
♥ 2,000 “Pump it up for Platelets” t-shirts distributed

ITP Awareness Month and Sport Purple for Platelets Day

♥ 3 international events
♥ 25 + newspaper articles including stories in the UK and India
♥ 8 TV feature stories on FOX, CBS, ABC and NBC
♥ 6,000 + ITP awareness bands distributed
♥ 1,500 + ITP awareness pins distributed

•ITP Day on the Hill

♥ 27 participants met with 20 congressional staff members from 10 states