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ITP Patient Studies: Let Your Voice Be Heard

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Periodically, PDSA seeks opinions on various aspects of treating and living with ITP. Below are the results from some recent surveys.

What You Said: “The Impact of ITP” Questionnaire Findings

Thank you to those who shared your ITP experiences through our online survey, and thanks to GlaxoSmithKline for funding and developing the questionnaire.

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Non-Traditional Treatments of ITP

In conjunction with James Bussel, MD of the Weill Medical Center of Cornell University, 916 participants answered questions concerning their experience with traditional and non-traditional (complementary) treatments as well as commented on physician communication.

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Health-Related Quality Of Life

A total of 1,002 ITP patients and 1,031 age and gender-matched controls answered questions from three standard quality-of-life questionnaires plus additional questions in a survey funded by Amgen. Selected results were published in three journal articles. Below are links to the abstracts. Contact PDSA for copies of the articles.

• “Impact of ITP on physician visits and workplace productivity.”
  
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• “Health-related quality of life of immune thrombocytopenic purpura patients: results from a web-based survey.”
  
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• “Impact of corticosteroid-related symptoms in patients with immune thrombocytopenic purpura: results of a survey of 985 patients.”
  
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