Periodically, PDSA seeks opinions on various aspects of treating and living with ITP. Below are the results from some recent surveys.
What You Said: “The Impact of ITP” Questionnaire Findings
Thank you to those who shared your ITP experiences through our online survey, and thanks to GlaxoSmithKline for funding and developing the questionnaire.
Non-Traditional Treatments of ITP
In conjunction with James Bussel, MD of the Weill Medical Center of Cornell University, 916 participants answered questions concerning their experience with traditional and non-traditional (complementary) treatments as well as commented on physician communication.
Health-Related Quality Of Life
A total of 1,002 ITP patients and 1,031 age and gender-matched controls answered questions from three standard quality-of-life questionnaires plus additional questions in a survey funded by Amgen. Selected results were published in three journal articles. Below are links to the abstracts. Contact PDSA for copies of the articles.
- “Impact of ITP on physician visits and workplace productivity.”
- “Health-related quality of life of immune thrombocytopenic purpura patients: results from a web-based survey.”
- “Impact of corticosteroid-related symptoms in patients with immune thrombocytopenic purpura: results of a survey of 985 patients.”