If you have ITP and you are tired, depressed, have muscle aches, or are just plain scared, you are not alone.
If your loved one has ITP and it is difficult dealing with their mood swings, symptoms, and all those platelet counts, you are also not alone.
Now for the good news - there are things you can do to help minimize these problems.
FREE PDSA Publications
• Coping with ITP (26 page booklet)
• Diet and Lifestyle Suggestions
• Emergency Card
Meet Others
• Talk’ to others on the PDSA Discussion Group.
• Join a Local Group.
• Attend the Annual Conference.
Get Caregiver Support
Find information at The National Family Caregivers Association
Wear Medical Alert Jewelry
Be prepared for an emergency - wear some notification. See www.medicalert.com or call 1-800-432-5378.
Deal with Prednisone Symptoms
There are things you can do to lesson the problems of weight gain, muscle loss, bone loss, mood swings, etc. associated with prednisone use. "Coping with Prednisone" is a book that can guide you to a healthier life while taking this drug or after you have stopped. It is available in The Platelet Store.
Stop Bleeding
Some doctors recommend Amicar (episilon-aminocaproic acid) or tranexamic acid to help slow mucosal (mucus membrane) bleeding, especially useful in dental procedures. The pill form can be carried with you and used in an emergency in case you start bleeding. Ask your doctor whether this type of product would be good for you or your child.
Remove Blood from Clothes
Just douse the spots with hydrogen peroxide. It makes the blood disappear and doesn't seem to harm the fabric.
