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Call to the Heart for ITP
We hope that we have touched your heart and you will join us in our mission to raise awareness and educate patients, family members, friends and medical professionals about ITP. PDSA will continue to encourage and support the development of research into the causes of ITP and of safe, effective treatments for all.
Now Accepting Applications
PDSA will be accepting scholarship applications for 2014 from March 10 – April 18, 2014.
ITP Conference 2014
REGISTRATION NOW OPEN!
July 11-14, Manhattan Beach Marriott, Manhattan Beach, CA
ITP Patient Meets Peyton Manning
Peyton Manning’s Legacy Includes More Than Football In Indianapolis
ITP Superheroes Pedal for Platelets!
A passion for cycling & their devotion to ITP patients brings 3 PDSA Administrators together for the cause.
- In the News
- ITP Awareness
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An unusual coincidence solved the mystery of the scary nosebleeds and low platelet counts
"Sheryl Stein lay in a Northern Virginia hospital , terrified that whatever was attacking the platelets in her blood might kill her before doctors figured out what was wrong. Alone late at night after her husband had gone home to be with their two young children, she worried about how they would cope if she died.
Stein’s symptoms had emerged in February 2006, when she began having frequent nosebleeds. Those were followed by purplish bruises that seemed more excessive than her natural klutziness would warrant. Then came a gushing menstrual period heavier than any she had previously experienced."
- by Sandra G. Boodman, The Washington Post. Photo courtesy of the family.
Prize-winning St Bernard dashes from Crufts-style show to save his dying collie mate with a canine blood transfusion
"The massive 12st dog called Bernard was tipped to win several awards Owner Chloe Davey, 16, was told a friend's pet was dying during the show Vets treating three-year-old Marley said his only hope was a transfusion Miss Davey rushed with Bernard to the vets where her dog gave blood Vets say Bernard's blood undoubtedly saved Marley's life"
- by Tara Brady, www.dailymail.co.uk
Bowling Green Woman with Rare Blood Disease to Receive Bone Marrow Transplant
"A young Bowling Green woman has been battling a rare platelet disease and two autoimmune diseases nearly her entire life. After almost 18 years of searching for a cure, she thinks doctors may have found one. She's is set to have a bone marrow transplant within the next few weeks, and her transplant will the first of it's kind."
- by Melissa Warren, WBKO
One Mother's Love Letter to Her Daughter with ITP
"There was that awful day the doctors misdiagnosed you with leukemia. They told me you were going to die if you didn't get immediate treatment, and all I could think of was, "No! My baby cannot be this sick. She's only 7 years old!"
- written by Dori Hartley - illustration by Dori Hartley.
One ITP Patient's Story
"Graceann had her spleen removed and received several platelet transfusions after her platelet count drops to life threatening levels. She credits donors with saving her life."
Virtual Pedal for Platelets
Jump Into High Gear & Leave the ITP Rollercoaster in the Dust! On November 23, 2013, PDSA Board Chair Peter Pruitt, PDSA Board member and ITP patient Jamie Harwell, and Dr. Michael Tarantino will make PDSA history. The 3 will ride 111 miles in 1 day in El Tour de Tucson on Team PDSA in support of PDSA programs & research!
"Making the world of ITP a more manageable place to be"
The Platelet Disorder Support Association is dedicated to enhancing the lives of people with immune thrombocytopenia (ITP) and other platelet disorders through:
Education • Advocacy • Research • Support
Comprehensive information on conventional therapies usually prescribed for ITP as well as therapies outside of the usual medical mainstream that some patients with ITP have used successfully.
Advocacy helps build awareness and support for ITP and other platelet disorders. Everyone interested in having more people know about ITP, having greater access to treatment, and getting more funding ITP and related diseases can help.
ITP Conference DVDs, free booklets and pamphlets, diet and lifestyle information, PDSA newsletters, journal articles and abstracts, PDSA E-News.
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The information on this Web site is for educational purposes only. For advice on your unique medical condition, please consult your healthcare professional.
|© Copyright 1997 - 2013, Platelet Disorder Support Association. All rights reserved. The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.
133 Rollins Avenue, #5, Rockville, MD 20852
Phone: 1- 87-PLATELET 877-528-3538 (toll free) or 301-770-6636