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Extraordinary nurses recognized
Congratulations to nurses Emily Kuykendall, RN and David Rasner, RN, recipients of The DAISY Award For Extraordinary Nurses. The DAISY Foundation is a wonderful organization that not only supports nurses and the special role they play in caring for ITP patients, but they have supported PDSA for many years.
MMRV showed higher risk for febrile seizures vs. MMR, varicella
"Secondary analyses that compared risk shortly after vaccination vs. 57 to 180 days after vaccination indicated both vaccines had increased risk for immune thrombocytopenia purpura and decreased risk for ataxia." - By Klein NP. Pediatrics. Healio.com.
Discontinuation of eltrombopag deemed safe after complete remission of primary ITP
"...165 women and 95 men treated with eltrombopag (Promacta, GlaxoSmithKline) for an average of 24 months after ITP diagnosis. Researchers reported complete remissions in 201 patients; of these patients, 80 discontinued treatment with eltrombopag." - By González-López TJ. Am J Hematol. Healio.com.
"Making the world of ITP a more manageable place to be"
The Platelet Disorder Support Association is dedicated to enhancing the lives of people with immune thrombocytopenia (ITP) and other platelet disorders through:
Education • Advocacy • Research • Support
Comprehensive information on conventional therapies usually prescribed for ITP as well as therapies outside of the usual medical mainstream that some patients with ITP have used successfully.
Advocacy helps build awareness and support for ITP and other platelet disorders. Everyone interested in having more people know about ITP, having greater access to treatment, and getting more funding ITP and related diseases can help.
ITP Conference DVDs, free booklets and pamphlets, diet and lifestyle information, PDSA newsletters, journal articles and abstracts, PDSA E-News.