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Local boy fights ITP
"September is a month with a long list of holidays and month-long observances that most everyone recognizes. For example there’s Labor Day, Autumn Equinox, Yom Kipper and National Preparedness Month just to name a few. But few people know September is also National ITP Awareness Month and if asked most couldn’t identify what the acronym stands for. One Ardmore mom wants to change that."
- By Marsha Miller, The Daily Ardmoreite.
Aging Matters Radio Show
PDSA Executive Director Caroline Kruse discussed ITP and PDSA on the radio program “Aging Matters” on KCRO in Omaha, on September 3, 2015.
Orphan Drug designation for Veltuzumab for the treatment of ITP
In a Phase 1 study, 1 low-dose veltuzumab, as a single agent, produced an objective response rate of 55% in 38 response-assessable patients with relapsed ITP, including 11 patients (29%) who reported a complete response. Furthermore, 10 responders achieved durable responses for more than 1 year, including 3 patients in remission for up to 4.3 years after veltuzumab treatment.
"Making the world of ITP a more manageable place to be"
The Platelet Disorder Support Association is dedicated to enhancing the lives of people with immune thrombocytopenia (ITP) and other platelet disorders through:
Education • Advocacy • Research • Support
Comprehensive information on conventional therapies usually prescribed for ITP as well as therapies outside of the usual medical mainstream that some patients with ITP have used successfully.
Advocacy helps build awareness and support for ITP and other platelet disorders. Everyone interested in having more people know about ITP, having greater access to treatment, and getting more funding ITP and related diseases can help.
ITP Conference DVDs, free booklets and pamphlets, diet and lifestyle information, PDSA newsletters, journal articles and abstracts, PDSA E-News.